Charlie Bird has shared that his motor neuron disease is “changing fast”.
He was diagnosed back in 2021 and has been sharing updates over the years.
He has also raised millions for several charities around Ireland, including Irish MND Association, Pieta House, Samaritans and Irish Hospice.
However, he has now shared the stark realities of the disease.
“My MND is changing fast.I am now using a feeding tube and will soon have to use a mobility travelator to get out and about,” he wrote on Twitter.
“Also I am being honoured by the Murrisk Community. They are giving a permanent home to a stone to mark Climb with Charlie. Now Brent Pope’s project is my goal.”
In 2022, Charlie famously climbed Croagh Patrick with a group of people, raising a whopping €3.6m for the national suicide prevention charity Pieta House and the Irish Motor Neurone Disease Association.
His Climb With Charlie campaign is now being honoured with a permanent stone in Murrisk. This is so lovely!
My MND is changing fast.I am now using a feeding tube and will soon have to use a mobility travelator to get out and about.Also I am being honoured by the Murrisk Community. They are giving a permanent home to a stone to mark climbwithcharlie. Now Brent Popes project is my goal. pic.twitter.com/hQQOsL15Uu
— Charlie Bird (@charliebird49) October 16, 2023
He also shared that he would be working with a new charity, Elephant In The Room, a project organised by former rugby player Brent Pope, which revolves around mental health charities.
He appeared on Ireland AM, speaking to Tommy Bowe and Muireann O’Connell about the realities of living with the illness.
“My motor neurone has taken a bad turn recently,” he explained using his speech-generating device.
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I have lost all power in my left hand and now the power in my right hand and arm has gotten really bad as well, so eating with my right hand is now getting much worse.”
He then went on to speak about the “nightmare” that he is living with.
“The other nightmare I face every morning is coughing fits.”